Event Title

Caring for a Family Member with Tuberous Sclerosis Complex (TSC)

Location

CSU Ballroom

Start Date

20-4-2015 2:00 PM

End Date

20-4-2015 3:30 PM

Student's Major

Family Consumer Science

Student's College

Allied Health and Nursing

Mentor's Name

Heather Von Bank

Mentor's Email Address

heather.von-bank@mnsu.edu

Mentor's Department

Family Consumer Science

Mentor's College

Allied Health and Nursing

Description

Family members who care for an individual with a disability can be strained emotionally, physically, and mentally. Support for these families is quite limited and it becomes even more stressful when the disability they suffer from is uncommon. Tuberous Sclerosis Complex (TSC) is a neurological disease in which the individual suffers from seizures which affects their mental capacity. This study seeks to understand the emotional, physical, and mental challenges that caregivers experience when assisting their child who has been diagnosed with TSC. The study asked family members currently caring for an individual diagnosed with TSC to complete journals that allow them to voice their stressors. The entries focus on the family’s personal concerns and experiences when providing care. Results from this study will reveal the caregivers’ struggles and stressors of caring for an individual afflicted with TSC. The study will also benefit other families who care for individuals with rare diseases by making it apparent that other families deal with the same issues and complications.

This document is currently not available here.

Share

COinS
 
Apr 20th, 2:00 PM Apr 20th, 3:30 PM

Caring for a Family Member with Tuberous Sclerosis Complex (TSC)

CSU Ballroom

Family members who care for an individual with a disability can be strained emotionally, physically, and mentally. Support for these families is quite limited and it becomes even more stressful when the disability they suffer from is uncommon. Tuberous Sclerosis Complex (TSC) is a neurological disease in which the individual suffers from seizures which affects their mental capacity. This study seeks to understand the emotional, physical, and mental challenges that caregivers experience when assisting their child who has been diagnosed with TSC. The study asked family members currently caring for an individual diagnosed with TSC to complete journals that allow them to voice their stressors. The entries focus on the family’s personal concerns and experiences when providing care. Results from this study will reveal the caregivers’ struggles and stressors of caring for an individual afflicted with TSC. The study will also benefit other families who care for individuals with rare diseases by making it apparent that other families deal with the same issues and complications.

Recommended Citation

Traxler, Ashley. "Caring for a Family Member with Tuberous Sclerosis Complex (TSC)." Undergraduate Research Symposium, Mankato, MN, April 20, 2015.
http://cornerstone.lib.mnsu.edu/urs/2015/poster_session_B/15